Polycystic Kidney Disease has plagued many families throughout the world, including my own. It often leads to kidney failure and a need for dialysis or transplantation. I was diagnosed with PKD at the age of 21 I never envisioned all that I would experience as life moved forward. This will be a journey of humor, sadness, desperation, love, frustration and all other emotions that come with spending a life bound to a machine you learn to love to hate keeping me alive. Blessings
Saturday, June 27, 2015
Thursday, June 18, 2015
Wednesday, June 17, 2015
Get your copy of the new PKD patient handbook
http://www.pkdcure.org/file/learn/documents/pkd-patient-handbook.pdf
Blessings
Blessings
Cardiovascular improvement for those with CKD
http://www.nephrologynews.com/articles/110797-exercise-improves-cardiovascular-fitness-in-patients-with-advanced-chronic-kidney-disease
Exercise helps glucose control
http://www.nephrologynews.com/articles/110949-exercise-helps-control-glucose-trim-waist-regardless-of-fitness-gains
Sexual and domestic violence. What do you think?
http://mic.com/articles/120780/angelina-jolie-s-feminist-speech-on-sexual-violence-deserves-a-standing-ovation
Potential solution for shortage of organs JAMA
http://jama.jamanetwork.com/article.aspx?articleid=2293309
Tuesday, June 16, 2015
Percentages of dialysis people living in poor areas increases by 10%??
http://www.nephrologynews.com/articles/110946-percentage-of-dialysis-patients-living-in-poor-neighborhoods-increased-over-5-year-period
Monday, June 15, 2015
Living 50 years with a living donated organ.
http://www.duluthnewstribune.com/news/health/3765579-fifty-years-later-northland-womans-donated-kidney-going-strong
Sunday, June 14, 2015
Be Happy
In this one moment. For today. For yourself. Be happy. Sending you all love and hugz.
https://www.youtube.com/watch?v=y6Sxv-sUYtM
https://www.youtube.com/watch?v=y6Sxv-sUYtM
Friday, June 12, 2015
Thursday, June 11, 2015
Wednesday, June 10, 2015
NxStage offers another reason to promote home hemodialysis: saving water | Nephrology News & Issues
NxStage offers another reason to promote home hemodialysis: saving water | Nephrology News & Issues
I find this article woefully lacking adequate information. It should include far more statistics regarding the in-home person vs. in-center person including time, pressures, flows. frequency etc. I find it almost impossible to believe a person doing in-center treatments would use over 400 gallons water per week but NxStage with System One uses less than 10% of water. Why? What makes the difference? Have they ever conducted studies of water usage with the same machine, same tx RX, same persons etc in their home to determine if the usage is accurate? Why would NxStage use less water? Especially if treatments are traditionally more frequent. I find the article much akin to comparing apples to oranges. What are your thoughts? Blessings
I find this article woefully lacking adequate information. It should include far more statistics regarding the in-home person vs. in-center person including time, pressures, flows. frequency etc. I find it almost impossible to believe a person doing in-center treatments would use over 400 gallons water per week but NxStage with System One uses less than 10% of water. Why? What makes the difference? Have they ever conducted studies of water usage with the same machine, same tx RX, same persons etc in their home to determine if the usage is accurate? Why would NxStage use less water? Especially if treatments are traditionally more frequent. I find the article much akin to comparing apples to oranges. What are your thoughts? Blessings
A Classic Case of Staff-Centered Care
A Classic Case of Staff-Centered Care
Ever happen to you? Is it worth waiting for 1,2 or even 3 hours or more for a 7-15 minute block of time with your dr.? Blessings
Ever happen to you? Is it worth waiting for 1,2 or even 3 hours or more for a 7-15 minute block of time with your dr.? Blessings
No Patient Harm?
http://www.trusteemag.com/display/TRU-news-article.dhtml?dcrPath=/templatedata/HF_Common/NewsArticle/data/TRU/Magazine/2015/Jun/Cov-high-reliability-zero-patient-harm-hospitals&utm_source=daily&utm_medium=email&utm_campaign=TRU#
Tuesday, June 9, 2015
Saturday, June 6, 2015
Depression and chronic illness. 5 tips to help.
https://www.kidney.org/content/depression-and-chronic-illness-5-ways-cope
Skull, scalp, kidney and pancreas transplant -- We're getting better at this stuff
https://www.yahoo.com/digest/20150604/texas-doctors-finish-worlds-first-skull-scalp-transplant-10103193
Friday, June 5, 2015
Tuesday, June 2, 2015
Spread the word
Okay friends it is the first of the month and as usual I am trying to get the word out about my need and my page. Please go to this page and click on "like" and then SHARE IT ON YOUR PROFILE PLEASE? I am currently at 970 likes and would like to be able to get just 30 more to reach my goal of 1000 likes. Can you help me with this please? Thank you & Blessings
https://www.facebook.com/AmyNeedsALivingDonorKidney
https://www.facebook.com/AmyNeedsALivingDonorKidney
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