Polycystic Kidney Disease has plagued many families throughout the world, including my own. It often leads to kidney failure and a need for dialysis or transplantation. I was diagnosed with PKD at the age of 21 I never envisioned all that I would experience as life moved forward. This will be a journey of humor, sadness, desperation, love, frustration and all other emotions that come with spending a life bound to a machine you learn to love to hate keeping me alive. Blessings
Friday, January 29, 2016
Do you hate the word compliance? Check out Henning Sondergaards blog/article
http://www.homedialysis.org/news-and-research/blog/136-from-compliance-to-concordance
Thursday, January 28, 2016
NN&I Transplant Community Looks For Ways to Incentivize Living Kidney Donation
http://www.nephrologynews.com/transplant-community-looks-for-ways-to-incentivize-living-kidney-donation/
Friday, January 22, 2016
Saturday, January 16, 2016
Mel Hodges HDC Blog post "Become A Smart Patient" Part 2
http://homedialysis.org/news-and-research/blog/134-become-a-smart-patient-and-save-your-own-life-part-2-empower-yourself
Thursday, January 14, 2016
CMS Preparing for Emergencies
http://kcercoalition.com/wp-content/uploads/2014/09/Preparing-for-Emergencies.pdf
4 Things You Should Understand About Living With Kidney Disease AKF Blog
http://www.kidneyfund.org/kidney-today/4-things-you-should-understand-about-living-with-kidney-disease.html#.VpVFCvkrKUk
Being Winter Weather Ready (as a dialysis patient) AKF Blog
http://akf2015.pub30.convio.net/blog/winter-weather-preparedness.html#.VpQNWPkrKUk
Wednesday, January 13, 2016
Renal Dosing Errors Frequent in Hemodialysis Patients NN&I article
http://www.renalandurologynews.com/hemodialysis/renal-dosing-errors-frequent-in-hemodialysis-patients/article/464340/
Tuesday, January 12, 2016
Peer Mentoring Reduces Missed Dialysis Treatments
http://www.nephrologynews.com/peer-mentoring-reduces-missed-dialysis-treatments/
NxStage Kidney Care Opens Clinic in Memphis, TN
http://www.nephrologynews.com/nxstage-kidney-care-opens-dialysis-center-in-memphis-tenn/
Pain? No relief these days. Read this blog by bobsnewheart and wordpress
https://bobsnewheart.wordpress.com/2013/07/17/why-your-doc-wont-prescribe-narcotics-no-matter-how-bad-the-pain/
Sunday, January 10, 2016
Switching Partners by Nieltje Gedney (Journey of a Lifeline Blog)
http://journeyofalifeline.com/2016/01/06/switching-partners/
Friday, January 8, 2016
HDC Blog by Mel Hodge "Become a Smart Patient...pt 1"
http://homedialysis.org/news-and-research/blog/133-become-a-smart-patient-and-save-your-own-life-part-1-follow-the-money
Is the New Allocation System Fair by Lana Schmidt
http://www.nephrologynews.com/is-the-new-kidney-transplant-allocation-system-fair/
NN Racial Disparities Eased By New Allocation System
http://www.nephrologynews.com/racial-disparities-in-kidney-transplantation-rates-eased-by-new-allocation-system/
A Lesson In Self Acceptance by Krista Ciminera
https://nkfstayinghealthy.wordpress.com/2015/12/30/a-lesson-in-self-acceptance/
Thursday, January 7, 2016
New Drug for High Potassium Now Available in U.S.
http://www.renalandurologynews.com/chronic-kidney-disease-ckd/veltassa-for-hyperkalemia-now-available-in-the-us/article/463499/
Wednesday, January 6, 2016
NNNews New Dialysis Technology Designed to be More User Friendly for Patients/Staff
http://www.nephrologynews.com/new-dialysis-technology-designed-to-be-more-user-friendly-for-patients-staff/
Unemployment Among Dialysis Patients is a Complex Issue
http://www.nephrologynews.com/unemployment-among-dialysis-patients-is-a-complex-issue/
Monday, January 4, 2016
Lab grown organs?
https://www.washingtonpost.com/news/in-theory/wp/2015/12/31/will-lab-grown-kidneys-fix-our-transplant-waiting-lists/
Why the most costly diseases get the least research money??
https://www.washingtonpost.com/news/wonk/wp/2015/07/17/why-the-diseases-that-cause-the-most-harm-dont-always-get-the-most-research-money/
Time to treat Donors with Respect
https://www.washingtonpost.com/news/in-theory/wp/2016/01/01/its-time-to-treat-organ-donors-with-the-respect-they-deserve/
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