Polycystic Kidney Disease has plagued many families throughout the world, including my own. It often leads to kidney failure and a need for dialysis or transplantation. I was diagnosed with PKD at the age of 21 I never envisioned all that I would experience as life moved forward. This will be a journey of humor, sadness, desperation, love, frustration and all other emotions that come with spending a life bound to a machine you learn to love to hate keeping me alive. Blessings
Saturday, May 30, 2015
Do Nephrologists need MORE COMPASSION?
This is a very interesting article that pertains to anyone on dialysis or close to it. Please read and respond. Written by my sweet friend Dori Schatell. Do we need our nephrologists and health care teams to exercise more COMPASSION?? What do you think? http://homedialysis.org/…/102-nephrology-needs-more-compass…
Friday, May 29, 2015
Thursday, May 28, 2015
Ten Issues Nephrologists Do Not Want To Discuss With Dialysis Patients (2014)
http://www.renalweb.com/writings/Ten_Issues.htm
Blessings
Blessings
Wide variability in organ donation rates: Midwest leads nation in highest rates of donations | EurekAlert! Science News
Wide variability in organ donation rates: Midwest leads nation in highest rates of donations | EurekAlert! Science News There's a bit of emotion here with me in that this article was co-written by University of Kansas or as we here in the area call it KUMed Center ~~ They have poor reputation by many former patients in regards to their Transplant Center. Be cautious when dealing with them. Blessings
Wednesday, May 27, 2015
Davita a free workplace????
Editor's note: One must ask how effective this "freedom" and engagement are if the company has had to pay nearly $1 billion over the last three years to settle whistleblower suits.
It is also a shame that DaVita patients are not allowed to participate.
As long as patients are not part of the "team," U.S. dialysis care will lag far behind other first-world countries as well as all other fields of medicine. By now, it should be obvious that Thiry's approach is not working and it only continues to marginalize patients.
http://www.prnewswire.com/news-releases/davita-healthcare-partners-certified-as-freedom-centered-workplace-by-worldblu-300088221.html
It is also a shame that DaVita patients are not allowed to participate.
As long as patients are not part of the "team," U.S. dialysis care will lag far behind other first-world countries as well as all other fields of medicine. By now, it should be obvious that Thiry's approach is not working and it only continues to marginalize patients.
http://www.prnewswire.com/news-releases/davita-healthcare-partners-certified-as-freedom-centered-workplace-by-worldblu-300088221.html
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